genetic diseases

Spare a thought for patients with rare diseases

They are being undone by misdiagnosis, lack of awareness, and limited treatment options

Helplessly, rare disease patients soldier on

In 2014, Iraboti Roy, 40, a patient with the disease Myasthenia Gravis, died a day after a doctor in the country’s top neurological hospital used a sedative on her.

December 26, 2022
December 26, 2022

Spare a thought for patients with rare diseases

They are being undone by misdiagnosis, lack of awareness, and limited treatment options

December 25, 2022
December 25, 2022

Helplessly, rare disease patients soldier on

In 2014, Iraboti Roy, 40, a patient with the disease Myasthenia Gravis, died a day after a doctor in the country’s top neurological hospital used a sedative on her.